Saturday, November 08, 2008

The Big Parent Syndrome (BPS)

(this is a modified version of a comment in response to this post by Intransitivus)

The job of the government is to conduct the policy, actions, and affairs of a people. Essentially, government is the big parent. When the big parent fails, the children must take their lives into their own hands.

In some cases, the big parent fails to provide access to medications necessary to improve a poor quality of life (For more information on this, see FDA/Pharmas: Conspiracy to Keep us Addicted, Not Cure Us by Intransitivus on nowpublic.com). Many will suffer rather than self-medicate, but those who are able to obtain necessary medications via alternate means should do so not with guilt, but be secure in the knowledge that their ability to govern themselves is superior to that of the big parent.

Yes parents, sometimes the child DOES know what's best for them.

The big parent wants you to feel like a guilty junkie even if you are a responsible adult who chooses to self-medicate responsibly. They instill this mindset in us from birth with their drug war, their commercials, their regulations, etc. The guilt trip is just one of many methods of psychological control.

Free your mind from the shackles of the big parent, the ultimate serial bully, in whatever ways you can. Its interests are rarely your own and as such it has always been a great disappointment to its children. It's well past time for the children to grow up and take care of themselves.

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How Effexor Touches Lives

In doing research for the previous post, I came across a particularly tragic story. The poster was a young woman whose husband lost all sense of reality and committed suicide several weeks after starting Effexor. He was only 23 years old at the time and in addition to his wife he left behind two small children. He had never been treated for a mental illness and there was no family history of mental illness or suicide.

I contacted her, both to share Jace's story and to find out if her family had received any legal justice. This was her reply:

" It is an extremely difficult thing to do - which is to literally watch a loved one self-destruct before your eyes and everyone else that loves and cares for them so very much with very little you can do for them.

Pharmeceutical companies are extremely wealthy and are very experienced with dragging out litigations and law suits in attempts to emotionally drain those family members tying to seek justice and in most cases surviving family members simply give up after a few years years because it is just so painful to constantly have to relive such painful times and not be able to grieve in peace.

If I am being honest, I am involved in a pending lawsuit but I do not get caught up in the process. Taking legal action for issues such as these, unfortunately they average anywhere from 5-15 years before any settlement agreement is ever reached - which is yet another reason so many give up and choose to not go this route. Even in cases as severe as ours, when such a healthy young husband, father, son is lost due to such negligence on the pharmacuetical company's part-- it bears NO "priority" in settling, they do not care that the wife and children left behind lose their homes because they can no longer afford to survive on a single income. They do not care that you can not even afford to have your loved one buried. They do not care that the surviving family members will require YEARS of counseling due to a completely avoidable tragedy. They simply DO NOT CARE. They instead will spend millions TO avoid paying any compensation to anyone and everyone even when they are deemed at fault. (I guess they would rather pay attorneys than to do the right thing and compensate the ones with the real losses.) I have had to force myself to follow this thing at a distance and I had to not allow myself to get too caught up in it because I have to stay mentally well to continue to take care of our two children as they became my main focus.

I am sorry that I do not have better news or information to report, as you can tell the lawsuit beat us up pretty bad during the first year so in order for me to stay focused on our children I had to back off.

I will keep your email information handy should any miracle occur and the drug company find any sort of "soul" about the torture they have put our family through due to negligence on their part in studies, informing patients of all possible side effects, etc. It is so sad because it was extremely preventable and so many people on a regular basis continue to have to deal with the very sad situation.

I will keep you in my thoughts and prayers and hope your friend, and also his loved ones who remain concerned for him, are able to help him find peace again as I am sure he is so tired of feeling the way that he does. Be persistent and never give up - they do not realize sometimes how unwell the medication has really caused them to be. According to my research, doctors claim that the neurological damages caused from side effects from these medications could possibly require a lifetime of medication to offset the chemical imbalances it creates in the brain.

Stay strong and make sure your friend knows that he is not alone, which I am sure you all do on a regular basis. Good luck."

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Tuesday, November 04, 2008

Effexor Experiences

Here are some words from Effexor users describing their experiences with the "antidepressant" found on message boards such as pandamedicine.com, the effexor activist's message board, and topix.com.

“I complained to my doctor the first day I took Effexor and was told "you either want to get better or you don't" so I continued to take the drug. I had had depression before in my life but I had never attempted to kill myself until after starting Effexor. I tried to kill myself 3 times because I didn't know who I was anymore and thought I was going crazy. I developed a seizure disorder and they never connected it to the Effexor but I haven't had a seizure in months and I have been off of it for several months now. I still don't feel like myself and I don't know how to make it better. Withdrawl was pure physical hell for about 6 to 8 weeks and I still think I am going through some withdrawl symptoms. I had my doctor tell a while back that maybe I should go on a small dose and try to wean off again and I said NO WAY. When I would tell them I felt more depressed they just kept doubling my dosage. It caused me to have rage, anger, so many things that I had never felt or said before. I have lost everything and am still floundering trying to get my life back or some form of it. I have contacted a lawyer to try and pursue this but thought I would provide you with a quick overview”

“My brothers case is truly tragic. In the 4 month period he was presribed 300mg he became extremely manic. He went into an unprecedented spending frenzy that left him in debt for over $900,000. He is now facing bankruptcy and the loss of his 16 year old fine carpentry business.”

"One day I'm okay, the next I'm planning out my suicide. Today is one of those days, just wrote yet another letter to my family explaining why I have to end my life. I have two small children who I love with all of my heart, but I am in such mental anguish that life is just not worth living anymore. Also, I've become so irritable that I think that I would be doing them a favor in the end. I fear that my brain is permanently damaged.”

"“Ive had all the horrible experiences with effexor, and I was never warned by anyone about how screwed up the side effects of this drug are. Thank God my issues haven't been as serious as the ones I've read about on this board. I suffered from the crazy dreams, inability to wake up, brain shocks, dulled sex drive/function, and a complete lack of concentration. "

“I am on effexor (150) and just tryed to kill myself. I need help, becuase my doc. said that it was becuase of my drug. I am so sacred of my pill and I am getting off, but should I file a lawsuit? Am I justfided at doing this, I can hardly afford the hospital bill as I am only 15 and my parents want me to pay for it what should I do?”

“I TOOK MYSELF OFF EFFEXOR XR ALL AT ONCE. I COULD NOT SLEEP WHILE I WAS TAKING THIS DRUG. ALSO, MY LIVER ENZYMES LEVEL WENT BACK TO NORMAL AFTER TAKING MYSELF OFF THIS DRUG. I FEEL ALOT BETTER NOW. I CAN ACTUALLY SLEEP . ALTHOUGH I DID HAVE AWHILE THERE WHERE IT WAS HARD , I DONE IT. I DON\'T WALK AROUND FEELING DRUGGED UP ALL THE TIME. I BASICALLY HAD NO EMOTIONS WHILE ON THIS DRUG, GOOD OR BAD. IT WAS LIKE I WASN\'T EVEN MYSELF. I HAD TO WORRY FOR AWHILE THAT SOMETHING WAS WRONG WITH MY LIVER. THAT IN ITSELF WAS VERY SCARY.”

“I have been on it for at least five years, at this point I know most the symtoms that all of you have mentioned and effexor is dangerous to come off of, I have attempted several times to get off of Effexor and it is not pretty. The side effects that I have while I am on it are just as bad. I would not care if you caught my hair on fire, I dont care about too much. I now have RLS, I can not sleep, some kind of seizures or shaking (not to be confused with brain shivers during withdrawl) if I do sleep, night sweats, leg aches and weight gain are some of the few. I could come up with more but my memory is not as sharp as it was in the past. I have told and asked doctors about this, they act as if I was making this up in the early stages of my encounter with this drug. I guess now they are some what saying that there is a problem. I have gone from 225mg down to 75mg a day over a long time and I still have a way to go, God bless you all.”

“i have been on effexor 150mgs,for over 5 months now. i am currently tapering down,with the help of my dr,even though she was mad that i wanted off of it.it ruined me.turned me into somebody i never was.i quit my job of 4 1/2 years,and went crazy on a shopping spree,bouncing checks,and losing my checking account that i had for 4 years.i now have all of this to pay off,no job.my credit is trashed.i have never done anything illegal in my life,until this damn rat poisoning got into my brain. Tricia”

“I have been on it for a year, I am comming off it now and am in living hell. While on it I bounced checks, ran up credit cards, just didn't care. It was like it created a monster. I couldn't figure out why it made me do this. I was always responsible before. So, now I have to try to peice my life back together and over come the withdrawl."

"My husband lost all senses of reality after only taking this medication after THREE WEEKS which led to suicide. There is no history of mental illness or suicide in his family and has never been treated for any type of mental illnesses. There were no listed side effects with the medication when he started taking it other than possible nightmares. He was only 23 yrs old and left behind a wife and two small children who will not give up until justice is done.”

"I too just shoved my problems in the closet, I've had to learn all over how to deal with my emotions. I was on Effexor for five years...
But I feel great now that I'm off of it! I'm healthier, happier, and more vibrant.
I really feel that this medication robbed me of four years of my life...and I have whole sections of my memory that are missing. My hands trembled, I had chest pains, lost most of my coordination, and forgot entire conversations while taking this medication.
I am so relieved to be free from it.”

“a psychiatric nurse practitioner handed out a 75 mg prescription for effexor to my boyfriend after talking to him for less than 20 minutes. He was doing well on risperidone for an undiagnosed schizoeffective dissorder. He had no complaints, but he trusted the nurse and began taking it. after less than a week the panic attacks, night terrors and feelings of "being posessed" were unbearable. He contacted the nurse practitioner and she told him to just stop taking it and he would be fine by the end of the day. two days later he slit his wrists."

“only took it a short while but the nightmares it gave me caused me to go off it after only a month or two”

“this drug should not be prescribed as it can be lethal and dangerous-My wife Has spent the last 2 years literaly bedridden- From this evil drug-“

“I was told over & over & over again that there was no withdrawal with EFFEXOR. I almost went to jail 2 times, thought of suicide, homicide and lost my relationship with my daughter for a few years over these side effects and withdrawals. I was a horrible mess and I get nauseous at the thoughts of what was and what could have been had I listened to the DR'S & pharmacists.”

“I started at 75 and went to 150 then last april my mom died in a car accident and the docs answer was "up your effexor" to 225. i started having facial swelling and hives and it would come and go. then i started having "blow your brain out" middle of the night 2 a.m headaches that would wake me from a sound sleep and i thought my brain would burst out my eyes. it felt just like someone was squeezing my brain, i could hardly walk, i had slurred speech, could half see and facial numbness. i would make it downstairs get a cup of tea with my husbands help and sit up the rest of the night scared as hell to go back to sleep for fear of dying in my sleep.”

"This is is day 8 of my going off of this drug, called Effexor ( Please Google "Effexor withdrawal". Wish I had before ever taking a single capsule).
After a week, I thought things were improving immensely. My"Brain zaps" seem to have been decreasing in frequency. Those are freaky. Like electrical shocks in your head! And you hear them. Like synapses misfiring. Remember the movie "altered States"? Really reminiscent of those morphing moments. Sure, I was still dizzy, light-headed, short-term-memory for s**t, blood-pressure 149/100, pulse 90 at rest, feel like bugs crawling all over my skin, eyeballs hurt, diarrhea, and my dick completely disappeared!
Also, autonomic stuff, like swallowing, has become a problem. If I'm prostrate in bed i start choking on my own saliva because that flap that sends food to one place and air to your lungs doesn't close when it should! And my speech comes haltingly. Not good for a professional announcer.
Night terrors in the last week are like nothing I have ever thought possible. Violent, ultra-disturbing dreams, usually involving animals and mutilation and unspeakable hereto for unthinkable thoughts of purest horror. Never ..."

“Effexor XR is the most one of the most dangerous drugs out there. The withdrawl is horrifying. Now my husband is going through withdrawl and his anger is intolerable. This could break up our marriage. All I can do for him is read what others have to say on the iternet. Let's get Wyeth to come clean!!!”"

“I too am a victim of this horrible drug--a so-called 'medicine' which was passed by the FDA for public consumption on the strength of (count 'em) 2 clinical trials. Both were only short-term (3 months) and involved between 2-5000 people. It took me 3 tries to get off effexor and many horrible symptoms. Before I took effexor I was a healthy man who seldom saw a doctor. Since, I am almost constantly sick with something or other. My health hasn't been the same. "

“Wyeth has insidiously turned trusting consumers seeking relief from depression into drug addicts that are forced to take their product. Personally I worry more about having enough Effexor than about having enough to eat. Oh, and I am back to taking the Effexor XR. I found myself at work crying because I felt so bad and one of the MD's I work with told me to restart it...”

“I doubt one single person on this whole earth would have ever put one single pill in there mouth if they had been told about the withdrawel effects. Don't give up..it will end..sometime...WITHOUT suicide so don't give up...fight it out, fight it hard...you have it in you. Just take every SECOND at a time, not every minute, every second and you'll get through it...you'll come out on the other end...we all can't give up..we have to get through this to stop the drug companies that made this and knowingly never took it off the market even after they knew what was happening. 2 days ago, I wouldn't have been able to offer any support..but now almost into my 14th day..I'm hurting bad emotionally, but nothing compared to where I was at 40 hours ago... I'm getting better...some people have gotten better faster then me, some longer, but I keep reading of people getting better.”

“..all suicide thoughts are now gone, my head feels completely clear of the chaos and the anger is gone. I'm on Celexa now for depression, which has taken awhile to "kick in" but today I feel way less depressed, but no less ready to fight against this drug company.”

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Saturday, November 01, 2008

Exposure: Pharma Reps

what kind of people are selling drugs to your doctors? are they ethical and knowledgeable, or are they a cut-throat pack of slavering wolves? find out on one of well over 100 anonymous company message boards for pharmaceutical sales reps at cafepharma.com.

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Thursday, October 23, 2008

Shadow Syndromes: Reviewer Gets It

on amazon.com a few weeks ago, i read a particularly well-written review of the book Shadow Syndromes: The Mild Forms of Major Mental Disorders That Sabotage Us. *

the reviewer uses this text and his own experiences to write a good critique of the confining DSM classifications and to provide a realistic view of brain complexity that argues for spending more time treating patient's symptoms and less on figuring out which box(es) they fit into. his analysis (and more fundamentally, that of the book's author) illustrates the dangers of not doing so. please read.

"Shadows Syndromes is a worthy read, in that it does a good job of highlighting the major disconnect between diagnostic categories and reality. While the DSM model has its uses (research and billing being the only two I can think of right now), it also serves to reify the notion that mental illnesses are precise, discreet disorders. Any one with an ounce of clinic experience will tell you that real cases don't fit neatly into categories. The diagnostic questions sometimes help think through and organize the presenting concerns, signs and symptoms. But often the debate over whether someone is suffering from a pure mood disorder versus PTSD versus character pathology serves as a distraction. Or , another classic example: spinning wheels arguing whether a patient is an addict with psychiatric symptoms secondary to drug abuse or are they actually someone with a primary psychiatric diagnosis who is using substances to self-medicate their mental illness. It's a meaningless exercise based on an overly simplistic model. But that one does matter because insurance companies consider one of those scenarios worth paying to treat and the other worthy only of their contempt.

In reality, just like any other organ in the body, the brain mediates a number of functions. It is responsible for mood regulation, memory, sustaining attention, shifting attention, interpreting social cues, integrating sensory information, regulating motivation of all manner of behaviors, and impulse control, to name a few. We all have various strengths and weaknesses, and we all fall somewhere on a bell-shaped curve for performance of each of these various tasks. People who shake out on the extremes ends in one particular area probably look like textbook definitions of specific illnesses (a "pure" mood disorder with no other comorbidities). That's rare. Looking at it even just from this sort of statistical model, one would expect that, for any given disorder, the number of people who unmistakably qualify for a specific diagnosis would be just a fraction of those who almost qualify. These "subclinical" cases are what Drs. Ratey and Johnson refer to as "shadow syndromes." They go a step further and assert that these people actually suffer more from mental illness, because they slip through the cracks. They are not quite sick enough to find themselves needing treatment, but they are impaired by their symptoms.

It's an important perspective that is explained in simple, readable terms in the first part of the text. The second part then breaks the shadow syndromes down into specific "mild" mental illnesses based on the traditional categories. So just imagine how densely the comorbidities can layer now. Is there anyone motivated to pick up this book that won't conclude that they have masked depression, are slightly bipolar, have a subthreshold intermittent rage disorder, mild attention deficit disorder, a touch of "autistic echoes" and are a shadow addicts? Then what are the implications? Does everyone need to be in therapy? Does everyone need to be on a finely tuned psychopharmacological regimen and a behavior plan?

I recommend this book, I think it's well-written and thought provoking. It does succeed in explaining complex issues in a way that is understandable to people outside the field without being simplistic or dull to people within the field. That's a tough line to walk. And I like the emphasis on blurry boundaries to disorders, and the overall message of understanding how your brain works, what your relative strengths and weaknesses are and how to make the best of things. But I worry that the take-home message for many will be to feel these diagnostic categories expanding, billowing out of their margins, pathologizing every aspects of our humanity as it envelopes us. While it gets at the true complexity of these disorders, it also does so with the bias that mental illness primarily a Biological phenomenon. Perhaps this is to combat social stigma and people's assumptions that these deficiencies are due to personal weakness (or- just as damaging- all to be blamed on bad mothering). Or perhaps, it's that, as we learn more about these disorders (which we are doing at a rapid rate thanks to the new abundance of genetic data and advances in brain scanning that lets investigators see brain regions light up as they work), we learn more about the biological aspects, since that is what we are looking for and trained to interpret. So, now the authors expand the scope of these diagnoses and therefore lead us to the conclusion that more people could benefit from psychopharmacologic treatments. It's a nice book to recommend to your patients if you take only self-pay patients and only do psychopharm visits. But it skims over the real beauty of psychiatry, the reason it is the most intellectually challenging field in medicine and the most rewarding specialty to practice, which is the multifactorial, composite nature of everything our brain is and does at any moment. No doubt the genetics shape the brain, as does the metabolic and endocrine factors in the uterine environment during development, as does nutritional factors, and then near infinite environemental variables acting constantly on each individual. From things as foundational as the fit in temperament between primary caregiver and baby, all the way out to religion and culture. From the preconscious memories of the earliest childhood experiences all the way out to this morning's headline news.

You can take the best brain in the world, if there is such a thing, but I guarantee the individual possessing it will be no healthier than the families, systems, and societies they inhabit.

So thumbs up for a great read, and a perspective that broadens our view of the mind and mental illness. Too bad they interpret the new landscapes with tunnel vision, but it's to their credit that they left me wanting more. "

*note that i haven't read Shadow Syndromes (although i'd like to at least skim it sometime soon).

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Sunday, October 19, 2008

Managed Heath Care and Sleep: Unmanaged, Not Care

(Cross posted to NowPublic)
[UPDATED: Oct 21, See Below]

If anyone's been really, actually, paying attention, Jace several times sought a medication named "Xyrem" and was denied it by the manufacturer and an organization named NORD. (please, type Xyrem or NORD into the search box up there in the top left corner)

He needed it because it is the only currently known substance that will provide relief for the CAUSES of insomnia, narcolepsy, and several other PHYSICAL and NEUROLOGICAL maladies of the brain's very structure. Xyrem, also known as "Sodium Oxybate" and GHB (gamma hydroxybutyrate). It is ridiculously regulated by the FDA in the USA. In fact, it is easy to make and is illegal to do so in the USA ONLY. The excuse is that it has been abused too much. MY suggestion is that it eats into the profits of the pharmaceutical companies that have tons of Ambiens and Lunestas to sell to hospitals. The drugs that corporations hand out like candy to hospitals in "Behavioral Health" wards when sufferers get put "into the system." Why solve the problem at its source? The Lunestas and Ambiens would no longer be entrenched into the system and their sellers/manufacturers would not be able to continue profiting from proliferating these socially-worsened conditions (the meds themselves worsen the conditions and cause addiction and sometimes death when, in desperation, an insomniac overdoses).

No one EVER was caught influencing the FDA, right??

The REAL malady is not "lack of sleep" or "daytime sleepiness." It is "Poor Quality of Sleep." Poor sleep quality is caused by the brain's inability to accomplish the deep sleep stages of sleep known as delta-wave sleep, or stage three and four in the "typical" sleep progression - this is when the brain is the least active and ready for restoration and repair.

By the way: There's a good book called "The Psychiatry of Sleep" that will educate you (and your ignorant doctors) about the most current knowledge of sleep (2006? - way more up to date than your doctor who graduated... when?).

Important Note: There are many instances of disinformation about which stages of sleep provide the most rest for the human mind, specifically pharmaceutical corporations advertizing in magazines and television, trying to sell hypnotic agents like Lunesta, Ambien, and others, declaring that REM sleep is the most restorative. THIS IS AN OUTRIGHT UNTRUTH. As always, don't believe it because you saw it on TV. I've seen it. I wanted to put my head through the CRT.

The origin of delta-wave sleep loss comes from several related, comorbid or independent sources. I suffer several of them (why do you think I'm writing this at the time when most people sleep?). Jace suffered several: Autism, PTSD, nightmares, anxiety, medication mixture complications (being "put" on inappropriate meds), misdiagnoses and more extensive details I wont expound on; the information is out there: do the research. Or, just read VictoryGrey's article titled "Excessive Sleepiness."

Managed heath care is not health care. It isn't managed. They manage YOU as they see fit and as best befits their stock holders and "the bottom line." It has nothing to do with "heath" or "care" as the good doctors and the sufferers will tell you. It's corporate ignorance and greed. The people running the organizations are not doctors nor competent in pharmacological chemistry. They pay "doctors" and "nurse practitioners" to write documentation for their own benefits. The benefit is: doing everything they can to NOT provide a human being with the means to heal. In other words, LIFE SUSTAINING MEDICATION IS REFUSED and in place of the "right stuff for the right job," they will proffer up chemistry mixtures that will WORSEN your condition.

Medicaid, a GOVERNMENT department, is a known practitioner of this tactic. You must FIGHT with their paper pushers to provide them the exact legalese language they demand in order to "pre-certify" access to the "right stuff." This oversteps authority, legal practice and goes right above the heads of doctors trying to do right by their patients. Who's the professional in health care? The neurologist who specializes in sleep disorder pathology and neurology or some minimum wage keyboard monkey shuffling pages in their "excuses for not providing what is asked" binder?

Insurance providers will proffer STIMULANTS to "keep you going in the day time," treating the symptoms (badly, and worsening the underlying condition) instead of allowing access to the medications that will deal with the CAUSE.

Citation 1 HERE demonstrating the use of stimulants.
Citation 2 HERE demonstrating the truth. Note this definition:
"Stimulant:
A substance that makes a person feel more energetic or awake. A stimulant may increase organ activity in the body."
Adderal, Ritalin (amphetamines), Provigil and other common "medications" for "daytime sleepiness" ARE STIMULANTS.

As mentioned before, I suffer insomnia too. Imagine what VictoryGrey said about Jace's memory playback to Mike in the "Trash [EDITED]" posting... do you suffer that? If so, you should be outraged enough to fight for your life. Are you? Can you? Are you too disabled to fight for your rights? Who will?

NO ONE.

Certainly not NORD. See Jace's correspondence to them HERE.

Some people, isolated by a society that thinks "it's all in your head," without legal or government support, may make complaints now and then, but they fall on deaf and willfully ignorant ears. It accomplishes nothing for themselves or anyone else. There is no "movement" or "class action lawsuit" where both ought be. Where is SOCIETY?

Managed Heathcare is just more of the sociopathic antisociety that Amerikans embrace via ignorance, complicity and the attitude of "I can't do anything about it." There is certainly a small amount of outrage that gets patted on the head in the media, but as a "Nation," there is no community support to help those in need. Those roads are blocked by government red tape and corporate greed and dismissiveness.

This is true for the topic of medication, homelessness, sexism, ageism, harassment, racism, neuroracism and more. This is not a "Nation." These are not "United" states. This is a land mass filled with antipathy, ignorance, greed, infighting and complicity. Even the few organizations who claim to fight for human rights are shamefully selective about who they select as their "glory fight," demonstrating just how wonderful they are. (insert inappropriate hand gesture here). ACLU, anyone? NOT INTERESTED.

Nothing will ever change for the better and this vile antisociety will continue plunging its roots into the dystopian soil it already grotesquely flourishes in.

Do you care?

Seems like you don't because Jace was at it for about four years (including while working) and I am still pulling my hair out today, scraping at my flesh nightly in agony of insomnia and parasomnias.

There's been no action. No outrage. No motion. There HAS been disinformation sponsored by your tax dollars (medicaid) and your reality television shows (the pharmaceutical commercials).

When does outrage become action? In this "Nation" of "me, myself and I," the answer is a depressingly likely "NEVER."

Congratulations.

Now I'm off to figure out what to do with my itching body, racing thoughts, aching muscles, irritability and the KNOWLEDGE in my head which will not help me get relief.

Sleep well. Or don't.

UPDATE: The company that makes Xyrem, owns the patent and works with the central pharmacy that distributes the medication AND the idiot organization called NORD is called Jazz Pharmaceuticals. Feel free to call and write your displeasure at how "heathcare" works in this antisociety.

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Thursday, September 25, 2008

My secret for yours

I was browsing around on Post Secret the other day and came across a postcard that particularly hit home for me.
When I was 19 years old, my mother swallowed several bottles full of pills and ended her life.

She made several prior attempts throughout my teenage years which were less serious and more of the "cry for help" variety. Of course I didn't want her to die, and I told her as much on each of those occasions, but it wasn't that simple.

She wasn't an easy person to love. Her behavior as a parent was negligent, belligerent, inappropriate, and damaging. She was an alcoholic, she suffered physical pain, extreme loneliness, anxiety, agoraphobia, and depression, and she was my only parent. Other family members (my brothers) were rarely around, so for the most part I handled her alone. I certainly gave a shit about her, but it was often hard to show it. I couldn’t save her because she didn’t even teach me how to save myself. We fought constantly, and it is difficult to imagine ever meeting another person as unpleasant and aggravating as she was.

All of that said, my mother loved and she deserved to be loved. She wasn’t always bad, and the times when she was good, she was very good. In particular, the years she had the love of my stepfather (before his stroke), was sober, and had a network of friends were quite pleasant.

She had a shitty life, to be sure, and she needed many things to compensate for the bad experiences that drained her dry. Perhaps most, she needed kind shoulders to lean on. Instead, her friends died off like flies and there were no more lovers. She needed her family, but they were settled on the west coast and we lived so very far away on the east (thanks to threat of divorce from my father who died soon after we moved). She needed financial resources, debt forgiveness, adequate health insurance, and assistance with executive functioning. Periodic visits from my much older brothers provided only minimal assistance with money and managerial tasks. For decades, doctors kept her drugged with a medication cocktail that, well, if you’ve read up to this point, you tell me how much you think the drugs helped her.

No one that could’ve given a shit and made a real difference in her life did.

So many would argue that she made her bed and she should lie in it. But we all make mistakes. We’ve forgotten the meaning of community. My mother had none and she needed it more than most. It’s too easy for most of us to tell others the answers and then turn our backs and expect them to help themselves up with our wise words, and it’s too hard for most of us to actually invest the time to figure out what is needed and what providing role we can play.

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Monday, September 22, 2008

phantom limb syndrome [Previously Unpublished]

"As I had been looking online for his current email address I discovered his blog (on Blogger, of course) and that he's in a 4-year relationship. That produced a jittery response in me, and for a solid hour it was all I could think of (foot-tapping and all). I was waiting at the DMV for my replacement driver license, so it didn't interfere with life, but I was still a little surprised that my reaction was that intense. Yes, after 16 years he still matters to me. Closure is never what I've wanted there, only acceptance."
i am not at all shocked or surprised. i was with jana for about a year when we (her & i and john&tammy) ran into kristin at Barnes & Noble. i had an intense reaction. It offended jana. It took quite some time for her to be "okay" with and "understand" the situation.

 She had never been through what i had been through. Her longest relationship was "dating" and it lasted weeks to a month or so. She had zero relationship experience prior to me and in the end it really showed, despite spending 7 fucking years at it with me.

 Lazy, selfish, insecure emotional child.

 i would have extremely intense reactions to crossing paths with her today. 

i have enough of a reaction to seeing kristin briefly through her blog, though it somewhat relieves me to find that she is exactly what i expected, as lame as that is. When she appeared at Barnes & Noble, i was pissed that, after months of not wearing it, i was wearing the hooded, over-sized sweater i had that she made fun of, and she even commented to tammy that i was "apparently still the same old jace" ... it pissed me off. i think i threw the fucking thing in a drawer and let it sit for a year or two before jana encouraged me to get rid of it with the clothing we were taking to the Salvation Army shop.

 It bothered me to continue to see [name]'s selfishness in her blog. It annoys me that judy never changed her address with the university, despite me telling her, twice, about mail coming to me. It would bother me to run into any of these people. Most of all, elise.

 i've fantasized about her showing up on my doorstep looking to make friendly and me telling her off, and then realizing that i am not sure i could [tell her off].

These things affect us. We only think we're beyond them because the parts of our brains containing these people stop being referenced. They go dormant. When something directly accesses those parts of our brains, we are shocked to find them still there, and then shocked to find them still the way they were last time. These parts never really go away. We just stop accessing them, for the most part. This is why i envy people who have made friends with their former lovers/mates. It allows a person to change that portion of their brain that holds the internal existence of the person and takes away the potential for future shock and surprise.

phantom limb syndrome, specifically pain, is the exact analogue to my loss of lovers. It happens for the same reason. It also happens because of the other things i said about memory of lovers in the previous email: the brain content is still there. In this case, though, that entire section of brain material becomes "illegal territory" because the removal of the "limb" is painful. This is why people try to close it off, shut it down and eliminate all paths to it. Pathways to these parts become active or available after long periods of dormancy by simply attaining a new lover or mate; it is by association with having had one before... "Which one was that? OW!" and then "and the others... OW!" [insert stimuli and responses here]

[written by Jace, previously unpublished. Originally written 2/2/08 at 4:54 AM - Intransitivus]

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Saturday, August 02, 2008

victim mentality

Maybe a subtitle could be "anti-social personality disorder, revisited." This is an extract from an earlier article i wrote called "Do Sociopaths Deserve Humane Treatment?"

Victim Mentality. The oft cited and rarely defined term that i shall define and cite for you myself.

Definition: blaming the victim for being one.
Citation: those enraged by being sought out as a target for hate and anger (actively or passively).

Sociopaths are people with an anti-social personality disorder. This, boiled down, means that a group of them cannot form healthy and productive societies because their very behavioral patterns are against the needs of the group and for their own benefit (including when they appear to be socio-conscious in order to appear perfectly normal and respectable).

The very right to be enraged or even hurt at the actions of another make you a bad person in the eyes and minds of the majority.

Example:

If someone walks into the room and denounces your work ethic to a bunch of your co-workers, several times a week, while you're not around to witness it and defend yourself on the spot or call out your accuser to prove his or her statements or back down... you've just been violated. An act of social and psychological violence has been made against you.

"I don't play the victim mentality role. It doesn't matter what people think, just how good a job you do!"

Sorry, but you are just as much a victim as if your boss walked into your office or cubical and pushed a knife into your chest without provocation. Sidelining again, what kind of provocation would justify that response?? Were you socially and psychologically tormenting your boss by spreading fear, uncertainty and doubt among every member of the workplace to the point that your boss was being shunned, joked about, and at risk of losing his life-sustaining income by losing job simply because you felt it was totally harmless to do smart-ass gossiping because you feel intimidated by his work experience?

It matters what people think of you if they control, socially, your accessibility to the pursuit of success, or even happiness.

True Victims do not choose themselves. It is not shameful to be a victim.

Victimizers choose their victims. Most often by way of jealousy and self-esteem issues. They seek those who they feel are not a threat to them. Those they feel they can control or with whom they can control the situation and the perception of events. This is shameful.

True shameful "victim mentality" is justifying your inhumane, cruel and violent actions by saying "He/she did this-and-that to me, so I am responding in kind. If others get in my way, that's just too bad. It's not like I'm targeting anyone innocent."

True "victim mentality" is "I'm going to be rude, cold and judgmental to you because that's what everyone has done to me my whole life. Why should I be sensitive to YOU when no one was sensitive to ME??"

THAT, is what shameful "victim mentality" is. Point your fingers, and knives where they belong.

Who's doing the pointing, anyway? In who's best interest might it be to make victimization into something the victim should be shameful and held responsible for?

The victimizers. The one's who have control over the situation and over you. Victimizers are the ones who devised the concept that being a victim is "your own damn fault." It's in their best interest that you be "ashamed for letting it happen to you." As though to defeat rational observation (and discussion) of true cause and effect, they seek to make the effect have no cause but itself.

"You worked with him before, so why would you work for him again if he's so bad??"

Yes, that one is DIRECTLY from my OWN personal experience. The complacent gossipers and the ignorant and naive bystanders trying to cover up the "unbelievable" fact that they have missed something and that they think you want special treatment (or have been getting it). The people who were not (yet) victims of the sociopathic victimizer. The ones who were once victims themselves but failed to escape and chose to find a pariah of their own. Or several. The people who hate you and victimize you for reminding them of how it feels to be victimized.

There are entire cults who rant against the slaughter and immorality of World War II and human slavery. Cult? i don't mean to suggest that the people who find these things objectionable are the cult members; i mean that there are actually people who find it A BOTHER that these things are still discussed and that they must be such a burden since "hey, man, it's not like i killed any jews or had any slaves, so leave me alone."

"Those who forget the past are destined to repeat it" (misquote)

This isn't philosophy. This is concrete reality. This is human behavior on the macro and microscopic level. From the individual to the group mind.

The the most critical concept to understand here is on the macro level: the individual victimizer and his or her victim. The way they propagate by leading one victim after another down the path of becoming victimizer. A victimizer is a much more aggressive person on certain fronts and are much better at holding on to what little they believe is theirs.

The more sociopaths are allowed to shape the world around them to best suit their own interests (not the interests of the group, the society or the species), the more damage they do (to the society) and the more sociopaths they CREATE.

You've heard the rhetoric about what growing up in a war zone, or in prison, or being a child of molestation creates: it creates a replication of the stimuli. The victim becomes hardened from constant assaults. A hostile environment creates a defensive individual. Constant exposure to hostility turns defensiveness into hostility. Hostility acts outwardly against those who appear to be the cause of the hostile environment... or maybe anyone... because "HE didn't stop it from happening" and "SHE didn't tell the boss about the gossip about me."

A hostile and toxic environment creates a hostile and toxic person. It can do nothing else. You either harden or you weaken. Those who weaken are frequently used by other people as a comparison or consolation agent; to ease their own suffering or make it pale in comparison. What better way to make your problems pale in comparison to someone else's than by MAKING someone else's problems worse?

Yes, you may think it's all fun and games. Harmless talk. Chit chat. Gossip. Play. Ribbing.

Play leads to exhaustion. Exhaustion leads to lowered stamina. Lowered stamina leads to sensitivity. Sensitivity leads to vulnerability. Vulnerability leads to being damaged by "lesser offenses." And in the end, you have victimizers, formerly victims, pointing fingers at the lesser victims; the ones they can pick at and NOT be brought to justice.

Human beings exposed to toxic experiences during their developmental stages very often become "rugged" or "tough" as a defensive mechanism. It's automatic part way, but then it also becomes part of the personality. That's when it becomes choice. Many people at this point choose to "take it like a man/woman" and "give as good as they get" ...

.. but on the inside... they're rotting out and becoming a shell of armor which protects a wounded child that never grew up and never learned appropriate and healthy ways of defending or avoiding the toxic and hostile experiences. These people end up with Borderline Personality Disorder.

BPD.

Anyone reading me on a regular basis knows that i struggle with the understanding that those who have abused me have become abusive because they themselves were abused. i empathize with these people because i know suffering well enough. At first, they like this. Later, they feel vulnerable because i see and know too much. Then i become a threat. To their egos. Their "hearts." Their agendas.

A person with BPD still can make distinctions between good and bad behavior. i've seen it demonstrated many times by many people with the condition. They admit to feelings of guilt. The problem is, they feel guilt because they know what they have done is harsh, cruel, rude, or just plain wrong... but they never learned how to empathize with those they have hurt. Most likely, no one empathized with their own suffering as it was forming their defense mechanisms years previous.

But they KNOW. They CAN distinguish the difference. They can CHOOSE to take an active role in their behavior patterns if they see value in it.

The value, ideally, should be "because it's best for everyone."

The value, more often in the real world is "so i can have friends and keep jobs."

It's still a value.

But some people choose an even more selfish and cold value for external self-control:

POWER.

"i
w a n t !"

Who wants power the most? Those who feel they have been powerless. Those who have had so much done to them beyond their control.

People with BPD naturally seek connection to and with other human beings. They also defensively seek control. Control over the interactions with others and the perceptions of them by others. If the satisfaction of the human connection eases the fears that demand control, these people can move towards a much better life.

A better path than those who get no satisfaction at all from connection to other human beings.

Anti-social personality disorders. That's what we're talking about. Personalities that work against the collective good and which tear apart the fabric of society and human connection.

When the only motivation left for someone with BPD is to seek power and control over everything and anything... they have stepped into sociopathy.

When the politics of the current Diagnostics and Statistics Manual of psychiatric disorders dictate obedience and subservience to certain rules, process and procedure in order for you to pursue your goals, your definitions and your rights, who is going to actively fight a system designed to protect itself? The DSM is, itself, a victim of victim mentality. Over extension. Over indulgence. The scientific method is abused this way and so too the "mental health system."

So, to repeat myself: i reduce the great, grand DSM down to what it really is: politics. i say a redundant "fuck you" to the DSM and i continue with my questions to you:

Is there a way back from the brink for a sociopath?

Should energy and time be spent seeking it?

Do sociopaths deserve that effort?

Is there a point at which we stop defining a sociopath as a victim and start defining them as nothing more or better than a weapon gone out of control?

Do you murder murderers?

If yes, do you execute sociopaths for the deeper, wider-ranging and longer lasting toxic effects they have on entire social structures?

You try to filter "criminals" out of society, but what do you do about the anti-social people who have no interest in society or who actively seek to control and manipulate it? Do you try to filter them out of society?

Most likely you don't even notice them.

Some of you might be becoming one of them right now... growing harder, colder, more selfish, more power-hungry, more obsessed with control and "having it YOUR WAY."

Maybe you're already one of them, looking at my blog and telling me how insufferable i am. Labeling my few supporters as "goons" and giving them other labels that essentially suggest i am a cult leader and they my mindless followers. i call bullshit on you. You're insecure. You couldn't express what you felt when you felt these things. That's when you choose to vote for charity to known sociopaths: you chose to protect your own interests. So you lash out at those who look familiar. Familiar as victims and victimizers.

Yourself.

You the victim and you the victimizer.

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Monday, July 28, 2008

Psychopathy and Antisocial Personality Disorder: A Case of Diagnostic Confusion

Regarding: something published and apparently ignored since February 1, 1996
Psychiatric Times. Vol. 13 No. 2: http://www.psychiatrictimes.com/display/article/10168/54831
"Written by Robert D. Hare, Ph.D. Dr. Hare, who has researched psychopathy for more than 25 years, is a professor of psychology at the University of British Columbia, and was scientific director of a 1995 NATO Advanced Study Institute on Psychopathic Behavior."
i wanted to introduce the topic of Sociopathy vs. Psychopathy into the materials present in Dr. Robert Hare's writing (both his articles found on the web, such as http://www.psychiatrictimes.com/p960239.html and his own website and writings in print).

His article at http://www.psychiatrictimes.com/p960239.html is near excellent in defining some very vital reasoning on why confusion of ASPD and Psychopathy is a terrible problem. Yet, i see a terrible problem in the lack of mention of Sociopathy.

The DSM not only lumps ASPD with Psychopathy, but also does the same with Sociopathy. Sociopathy and Psychopathy ARE Anti Social Personality Disorders. More so, they DIFFER in perceptually small yet effectively VAST ways.

i was very excited to find the book "The Sociopath Next Door" by Dr. Martha Stout. i was confused when a friend read the book and found it lacking my own personal differentiation between sociopathy and psychopathy. i examined the parts she cited and felt she was indeed correct. i had lead her to a book that does not go where i thought it did and where i have been going very frequently in my attempts to educate others.

i have since located some web-based material called "The Psychopath Next Door" which is reportedly Martha Stout's website (which looks outdated and does not indicate her name). The information on this page seems VERY similar to her book. It occurred to me that the process of formalizing her writing on the topic had forced her to change from the subject of Psychopathy to Sociopathy because the people she was writing about were not murderers, cult leaders or other such common psychopathic actions. It is fortunate that she changed terms before publishing the book, but unfortunate that it does not do near as well a job as my own talks with people to define the difference between the two labels.

Most importantly, i think it is VITAL that all of this information be brought back into public discussion, form part of whatever processes involved in producing the next (unfortunately biblically followed) DSM edition, and CLARIFIED to eliminate the confusion that is growing more and more rampant.

i have a personal motivator here. i was harassed, intimidated and abused by several sociopaths. To my knowledge, they are not psychopaths. Their ASPD stops at the point where they attempt to preserve their social status and maintain their adherence to the majority of laws and social rules that would have them filtered out of society, should they break those rules and laws. i have no interest in "protecting" these people in any way (i would love to see sociopaths filtered out of society just as psychopaths tend to filter themselves out after committing crimes), but i DO see a neurological connection to two neurological/psychiatric items that do NOT deserve to be lumped into the same category as psychopaths:
  1. Borderline Personality Disorder. This is largely a defensive mechanism of the human mind in response to extensive and intolerable amounts of mental (and often physical) abuse. Most typically observed in females from teenage to about 35, is the claim of much material on BPD. Noted is the "mysterious growing out of it" effect that i have read about in several published materials on BPD. i find this irresponsible and i "see" what is likely happening: BPD leads to sociopathy, if not treated, cared for or otherwise halted in its tracks.

  2. BPD appears to be a VERY common comorbidity of autistic neurology in the later years (between teens and mid 30s).
You see the process i am illustrating?

High Functioning Autistic neurology leads to much social (and often physical abuse) through the "growth years" and the comorbid condition of BPD establishes a strong hold to preserve the mental integrity of the individual. A worst case scenario leads to the terminal point of BPD transitioning into Sociopathy.

In case you cannot predetermine my personal bias here, i am autistic.

My autism spectrum label would most likely be Asperger's Syndrome, but the longer i continue to combat "the system" as an individual, and combat sociopaths and "professionals," the more i am forced to wonder if i am something slightly higher functioning than the high functioning AS individual. My self awareness and intelligence has made me feel rather alienated by those AS persons i have encountered in AS communities and the "professionals" refuse to recognize me as BEING on the autism spectrum (because apparently they do not grasp that austistic children eventually GROW UP with or without a diagnosis). i did not have a diagnosis of anything until about a year ago when i pursued the diagnosis of AS through independent research and a rough time locating professionals who could see beyond their traditionally myopic perspective of only working with children.

AS, and autism in general, has many features that are similar to the criteria for ASPDs and many are perceived to BE antisocial. Worse, it seems to me, from my own personal research and experience, autistic neurology is a potential catalyst for becoming an antisocial person, a "Borderliner," Sociopath or psychopath. The determining factors seem to be nurture (positive or negative) and self awareness (though that lucidity of self awareness is questionable in terms of how it comes about and whether it can be taught or learned).

My point: Sociopaths are more dangerous than psychopaths. They do not get filtered out of society because, as many have stated, the "dog eat dog" aspects of "modern society" seem to encourage it and getting "ahead" in society seems to be enabled by the traits of sociopathy. Also, i know MANY persons with AS and BPD. None of them deserve the mistaken presumption or sloppy and incorrect diagnosis of Sociopathy or Psychopathy.

The DSM needs to be moved drastically into a "spectral" format instead of solid on and off bipolar determination. i am hoping that interaction from people such as myself with people such as the professionals "in the business" (especially those who are authoring books and being read by other professionals and students of the topics he presents) will eventually lead to a healthier DSM and better diagnostic results from the "professionals" who use the DSM as the end-all be-all bible of "mental health."

The mind is the brain. The brain is the mind. Knowing how it works, and why it works in the ways it does, is the best route to a healthier human species and human societies.

Thank you for reading this rather long message. i would like to send a copy to Dr. Robert Hare, but the website indicates a postal address only for personal correspondence. i hope that this message is a little of both; please do forward this message to him if that is possible. Otherwise, i will have to use the postal service.

-jace cavacini
dysamoria (at) dysamoria dot com
http://dysamoria.com

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Thursday, July 24, 2008

eating's over rated [EDITED]

i just spent my last 3 bucks of EBT on three small cans of vegetarian baked beans.
i put my coins together and have a total of $1.09.
how many days until SSD and EBT deposits?

people are dangerous.

so are the drugs they put me on. disAbilify made it almost impossible for me to function since starting it. i've been out of the house about three times. i suffered extreme exhaustion each time. i'm tapering off of it, but it's not fast enought to satisfy me. i have had to take the old Provigil along with it... to no effect i can tell.

[There are very few long term studies of the neurological and other physiological changes to the human body when subjected to psychiatric medications. There are many side-effects and warnings that the makers of the drugs must publish. Yet, the first thing done to people when they are put into the "Behavioral Health" wards at every hospital in the lehigh valley is giving them drugs. Anti-psychotics. Mood stabilizers. Anti-depressants. Drugs which keep people from being able to eat, sweat, stay awake, sleep, orgasm, tolerate sunlight or heat... drugs which INCREASE the likelihood of suicide attempts. These people are then treated like criminals, force fed poor quality fattening foods, forced to wander around the limited space available, with limited mental stimulus and barely space enough to exercise because they will be "punished" and marked-up for sleeping during the daytime, not leaving their rooms, not eating all of their food at each meal, refusing to take medications that make them feel ill or sick, not accepting the demands of doctors who treat patients like templates, or even being coerced or forcibly injected with medications or given electrocution of the brain as "healthcare." If you send your family member to the hospital, you may be doing them a horrible injustice and worsening their condition, especially if it is against their will.]

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Friday, May 30, 2008

the fuckers win again: nightmares, sleep seizures

all of the stress caused by the recent topics below lead me to hours of undrugged, exhausted sleep where i had nightmares unending, paralysis and seizure activity. my existence is torture and the blame goes to all of the various motherfuckers listed below this posting on into the last three years. when do i get my relief and my payback for suffering your fucking sociopathic society's abuse??

To: board.directors@covidien.com, investor.relations@covidien.com, wayde.mcmillan@covidien.com, cole.lannum@covidien.com, david.young@covidien.com, grants.administrator@covidien.com, "Spencer, Gina"
Date: May 30, 3:50am.

i just spent the last several hours suffering nightmares, not resting, and ending up with a sleep seizure because of the compounded stresses of having to deal with your lousy company and people like mr. joe doria for far too long.

your organization is sociopathic. it has no moral or ethical responsibility. it's all talk and will talk and lawyer its way out of any responsibility of any kind. corporate entities like covidien are a cruel joke and cancer on society itself.

stop claiming to care when all that really matters to your corporation is money and disclaiming all responsibility for its actions.

your company, and the rest of the abusers i've suffered my 32 years of autistic life owe me millions in compensation. instead, you just legalese and BS your way through everything.

law should put your business down permanently.

you should be ashamed from the highest levels to the bottom.


-jace cavacini
victim of abuse since childhood, soon to be dead from it.

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Thursday, May 29, 2008

force them to comply via embarassment

This is a follow-up to the previous blog entry...

Today i received three emails in response to my mass mailing. First, chronologically, was from the hospital. A technician informed me that they changed their software and could provide me with a CD with my raw data on it (like i had asked, over a year ago, but was told this was not possible). the second email, chronologically, was from Joe Doria at Covidien. i wont even attempt to describe. just read it below:

Jace,

As I have always said, the issue of patient data, and viewing patient data is between you and the Sleep Lab.

I have copied JoBeth at the lab, and she will be contacting you directly. I understand that they have offered to have you come into the sleep lab to review the record with the staff but you have not done so.

I would appreciate it if you dealt directly with your doctor, and with the sleep lab in the future for any requests which pertain to your confidential patient information.

Respectfully,

Joe Doria

i replied with the following:

"Respectfully??" Not even close, Mr. Doria. Even in your last email, you STILL refused to answer the same damn question i've asked sensibly and politely for over a year.

Jobeth emailed me prior to your email. She informed me that the software they have at this time allows me to take my data home on a CD for viewing on my own computer. Things apparently changed since the original test, but because YOU were uncooperative and refused to answer my very simple question about the software, and because you refused to facilitate understanding of your company's product between both parties, NOTHING was accomplished for over a year. YOU were contacted to determine if there was a technical limitation or a misunderstanding by the technicians at the hospital. You were not contacted to deal with "confidential patient information." That's patently absurd. You simply refused to cooperate for whatever reason (i can only imagine; laziness, sociopathy, apathy, disinterest...).

Unprofessional and unkind.

Don't claim to sympathize. i don't want your last minute hollow words of customer service. Don't give me the passive-aggressive argument that i "refused to go in to the doctor office to review my data." This is nonsense. There is no basis in fact for such nonsense because it is completely outside the context of my inquiry. You would know that if you comprehended my request from day one (or 20). i can only assume it's an attitude problem on your part; if you had taken a few minutes to actually deal with my very specific inquiry, this would have probably been finished a year ago.

There is no reason why i should have had to send a mass email throughout Covidien just to get this resolved. This was my last resort after dealing with a year of deadlocked stonewalling from you. Your handling of this has been unprofessional and rude and you've clearly been forced to take the action you should have taken previously.

You've clearly demonstrated an incapacity to empathize with the feelings and emotions of other human beings and such a personality has no sense of ever doing wrong. You don't belong in a position relating to the handling of technology for human health care. Unless you're going to admit your wrongdoing and apologize, just stay silent from this point on. There's clearly nothing you can (or will) do for me and this is my final message to you. Hopefully someone of authority over you has now noticed your lack of customer service and communication skills. It didn't have to go down this way. This is your doing. It doesn't take an autistic genius to figure that out.

-jace cavacini

i copied this to the kind person at the hospital and to the person who sent me the third message, chronologically: a person responding to my complaint of ethical concerns to the Covidien Board of Directors. i explained to her that her message demonstrated that she did not read the actual email exchange between myself and Doria because she quoted the same irrellivent nonsense Doria did (that i was asking them to provide my "confidential patient information."

How do these people even get EMPLOYMENT when they have such poor reading comprehension and why the HELL am i the one who lost my employment when incompetent people like Joe Doria are able to work for multi-billion-dollar corporations in HEALTH CARE??

Below is the exchange between myself and Gina Spencer of Covidien:

From: jace
Sent: Thursday, May 29, 2008 4:40 AM
To: #Grants Administrator; Young, David; Lannum, Cole; McMillan, Wayde; #Covidien Investor Relations; #Covidien Board of Directors
Subject: [Fwd: Re: Thank you for responding, but i still need some confirmation: Re: FW: at least have the decency to RESPOND THIS TIME]

Please examine this communication exchange and tell me if Joe Doria is behaving in the way that your company thinks is "Socially Responsible," "compassionate," and "accountable" (among other self-congratulatory terms)...

i notice that your "socially responsible" and "accountable" board of directors and management have self-congratulatory bios, but not a single contact method (phone or email).

also, i still need a direct and relevant answer to my very important question.
--------

Spencer's reply (she was not one of the addressed):

Dear Mr. Cavacini:

I am in receipt of your e-mail dated May 29, 2008, to the Covidien Board of Directors. This is indeed the correct contact method to notify the Board of Directors and Senior Management of any ethical concerns.

Regarding your message to Mr. Doria and subsequently to the Board of Directors (et. al.), Covidien is the manufacturer of the Sandman equipment, but we do not have access to patient data. It would be inappropriate for us obtain your data from the lab to fulfill your request because there are laws that govern patient privacy, and we will not violate those laws.

I believe Mr. Doria has arranged for the sleep lab to help fulfill your request. It is my understanding that Mr. Doria has arranged with JoBeth Newhard of the LHV Sleep Disorders Center to provide you with your data in a portable format. I was forwarded a copy of an e-mail sent to you on May 29th from Ms. Newhard that outlines how you may take advantage of this opportunity.

I believe this settles your matter in a positive manner, which is hopefully acceptable to you. Good luck with your pursuit of this matter and, of course, your health.

Sincerely,

Gina Spencer
Ombudsman

Please note new E-Mail address: gina.spencer@covidien.com

That's right, folks... these people have employment and comfort while i have disability checks that don't cover my living expenses after sociopathic people (such as will jefferson and sharon picus at Kutztown University and these Covidien people) ruined my ability to function via passive-aggressive harassment, abuse and illegal behavior. Yes. jace loses. The disabled person loses to the privileged people.

Fucking spectacular.

As i asked previously: when did this become acceptable business practice? This nation is going down the toilet because passive-aggressive people win.

Don't let them. This is YOUR FUCKING COUNTRY.

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passive-aggressive neighborhoods...

my father and i worked on my lawn today after he brought me home from a check of my ambulatory EEG wiring at hospital.
Yesterday, after he dropped me off from the hospital, i pulled tall grass with my hands (while wearing my EEG) because i my trimmer batteries needed charging. i respect the responsibility to take care of my yard in how it affects my neighbors; why make anyone tromp through grass between their vehicles and the sidewalk?

... Back to today...


As has happened EVERY TIME i've worked on my yard, from day ONE at my house, while i was trimming, my elderly neighbor Anna came out to harass me. She stood on my yard, approached me, attempting to "talk" to me. i wore ear plugs to protect from the trimmer noise. i KNEW Anna was there to harass me. i tried to ignore her. Finally, i could no tolerate no more.


i turned off the trimmer and faced her (she was only one foot from me already). i didn't get a chance to talk before she started "asking" if i was going to "remove those weeds over there" (pointing to the area i had previously started cleaning up BY HAND, while wearing an EEG, YESTERDAY).
i told her "Do you see me working here?"
She replied "Yes, but-"

i interrupted with: "i am working on my yard."
She then started AGAIN to complain and i again interrupted her:
"i'm taking care of my responsibility. Go back to your own place."
She tried to "win" an argument i was not having by telling me "Never mind" and then walked away.
About 15 to 20 minutes later, Anna was "conspicuously whispering" to another neighbor; i felt the "spidey sense tingling" ... seemed she was complaining about me. The second woman politely gave "mmm hmm" responses without words.

On the opposite side of me lives Dotty/Dorothy, the other elderly neighbor who has harassed me. She's not bothered me in months, though she ignored the hell outta me walking past me as i was sweeping-up HER side of the walkway.

Anna has Obsessive Compulsive Disorder and is passive-aggressive. Dotty is passive-aggressive and maybe has OCD a bit, too. i know this because of three years of ob
servation. i personally feel Anna's argumentative and passive-aggressive personality is what put her husband in the ground.

These types of behavior are extremely toxic. Especially to me. It's exactly what i dealt with at KU. It 's what i suffered most of my life while trying to "be the good boy" and do as people instructed. Trying to comply with passive-aggressive people lost me my job because these people cannot be satisfied.

Not Ever.

The next time Anna harasses me, i'll contact the police and pr
ess harassment charges. i cannot continue to allow people free reign over me like this, whether they are "old" or not. OCD and passive-aggressive disorder aren't just "old age problems." They're anti-social disorders, as in "anti society." i'm doing more than my part, trying to fit into society. i don't see why i should suffer anti-social harassments and abuses by people who skate just along the edge of legality when they strike... just because "they're old" or because they're "not breaking the law conspicuously."

"Bullying isn't illegal" - Sharon Picus,
HR Manager, Kutztown University, Sociopath.

i believe i have the right to live and work in non-hostile environments. That right at work was violated. i won't continue allowing it to be violated in my own goddamned yard WHIL
E i am COMPLYING with the requirements of the society.

OCD reference
Passive-aggressive reference
Malicious_compliance (related to above and what i've suffered)
Sociopathy reference (not a great reference but best i could find quickly and better than Wiki's because Wiki's pedantic and inflexible nature of not including information that's not agreed to by the shitty DSM-IV TR. More about sociopathy on my blog).