holding yourself up on the morning lift
a golden band
swallowed in fingery flesh
alludes to health brevity
and marital longevity
'round heart the two enmesh
Labels: corporeal, creative writing, love
Labels: corporeal, creative writing, love
Labels: creative writing, love, sensory
When I was 19 years old, my mother swallowed several bottles full of pills and ended her life.She made several prior attempts throughout my teenage years which were less serious and more of the "cry for help" variety. Of course I didn't want her to die, and I told her as much on each of those occasions, but it wasn't that simple.
She wasn't an easy person to love. Her behavior as a parent was negligent, belligerent, inappropriate, and damaging. She was an alcoholic, she suffered physical pain, extreme loneliness, anxiety, agoraphobia, and depression, and she was my only parent. Other family members (my brothers) were rarely around, so for the most part I handled her alone. I certainly gave a shit about her, but it was often hard to show it. I couldn’t save her because she didn’t even teach me how to save myself. We fought constantly, and it is difficult to imagine ever meeting another person as unpleasant and aggravating as she was.
All of that said, my mother loved and she deserved to be loved. She wasn’t always bad, and the times when she was good, she was very good. In particular, the years she had the love of my stepfather (before his stroke), was sober, and had a network of friends were quite pleasant.
She had a shitty life, to be sure, and she needed many things to compensate for the bad experiences that drained her dry. Perhaps most, she needed kind shoulders to lean on. Instead, her friends died off like flies and there were no more lovers. She needed her family, but they were settled on the west coast and we lived so very far away on the east (thanks to threat of divorce from my father who died soon after we moved). She needed financial resources, debt forgiveness, adequate health insurance, and assistance with executive functioning. Periodic visits from my much older brothers provided only minimal assistance with money and managerial tasks. For decades, doctors kept her drugged with a medication cocktail that, well, if you’ve read up to this point, you tell me how much you think the drugs helped her.
No one that could’ve given a shit and made a real difference in her life did.
So many would argue that she made her bed and she should lie in it. But we all make mistakes. We’ve forgotten the meaning of community. My mother had none and she needed it more than most. It’s too easy for most of us to tell others the answers and then turn our backs and expect them to help themselves up with our wise words, and it’s too hard for most of us to actually invest the time to figure out what is needed and what providing role we can play.

Labels: art, corporeal, desires of suicide, exposure, love, medication, neuroracism, photography, psychiatry, psychology, respect, truth
From: Jace Cavacini
To: ManagerMom
Subject: my life is so fucking invisibly unfair
don't let this happen to your kids
i just woke from several hours of PTSD-type dreams. one was specifically about getting screwed by believing i was the one single person wrong in a room filled with people who had no problem. the materials given to me were wrong!
i was vindicated in the end but it cost me stress and embarrassment and i was forced to openly disclose my autism in a classroom environment after already being terribly embarrassed in front of everyone by being treated like i was just being stupid.
here i am, woken up, angry, crying silently, knowing i'm the only person who will ever know that i'm suffering this way every night, how much it hurts and that the dreams' contents reflect EXACTLY the real life experiences that MADE me have PTSD in the first place. it's all fucking INVISIBLE and no one in the outside world can appreciate it nor is there any help, support or justice to combat the damages done.
this is why i exposed my life before the world on my blog and in nowpublic.com articles and why i disclosed my autism at work. the results are why i'm tired of speaking at all.
i sought public awareness. instead i found more personal harassment and injury. insecure and bitter people looking to make other people smaller than themselves so they can feel better about themselves (like john and jefferson and anonymous cowards on comment forums).
i received punishment for exposing my differences and the truth about the people who treated me so poorly. punishment for showing just how fucked up these things have made me. punishment for not just swallowing it all silently. how dare i speak up.
along with medications encouraging me to act on suicidal impulses and other impulsive thoughts, my very existence is agony night and day and there's no way to prove it to anyone. no justice. i'm just an example of life's losers. a loser by "being dealt a shitty hand."
that's the only admission i've received from anyone, even family. "well jace, you were dealt a real shitty hand."
that admission doesn't even come close to helping me because it's just hollow words spoken by people who can't perceive the suffering i'm living because if the suffering i lived.
how am i ever supposed to heal from something the outside world never accepts or understands? what is my motivation to to even try? on the outside, it all looks to people as though i simply have to stop having a bad attitude. fuck that."
Jace,
Thank you for sharing that with me. Although I am happy to say that things in our school are much different and more supportive, it doesn't change the fact that yours was not. That is just one of the many factors that influenced you. I think it's incredibly amazing that you survived all that and can talk about it in a way that helps others see that it is the rest of us who need to change. I have changed so much since meeting you. The way I deal with my children is much different today than it was a year ago.
Last night while we were helping the kids get ready for bed, Ian suddenly became extremely angry and started punching Steve. When he didn't calm down after several thwarted throws, I gently took his hands and led him away from Steve. Then I asked, "Ian, what has made you so angry?" He said something that didn't really make sense. So I asked the question again. Once more he said something very off topic. I asked one more time, slowly and quietly. His breathing slowed and I could tell he was thinking. Finally, we were able to discern that it was the way Steve told him to go brush his teeth that had set him off. I asked if yelling and punching had made him feel better - "no" was his reply. I told him when I am angry, a warm, deep hug makes me feel better. So, he sat on the floor in my lap and we hugged. I could feel his body relax and the anger leave him. I have you to thank for showing me that Ian's outbursts require evaluation and compassion, not punishment.
Over the last several weeks, I have been involved in a very intense argument with someone who used to be a good friend. Her children and mine have been best friends for 3 years. I thought she understood us and how we do things. She does not. This has caused us to part ways as friends, although we are trying to preserve the children's relationships. This is extremely difficult. She feels all non-conformist behavior should be punished, even if the intent was not to harm others. She just doesn't get it. Hopefully, I will eventually be able to help her understand the dynamics of living in a family with autism, but I am not holding my breath. Nor will I lose sleep over it any longer. If she can't look deep enough to see those things which are invisible, to feel them with her heart and deal rationally with them, then she won't be part of our circle of friends who are able to do that.
Thank you, Jace. You are changing the world ... one person at a time.
Love,
ManagerMom
Labels: autism, behaviors, choices, humans, love, respect, truth
"As I had been looking online for his current email address I discovered his blog (on Blogger, of course) and that he's in a 4-year relationship. That produced a jittery response in me, and for a solid hour it was all I could think of (foot-tapping and all). I was waiting at the DMV for my replacement driver license, so it didn't interfere with life, but I was still a little surprised that my reaction was that intense. Yes, after 16 years he still matters to me. Closure is never what I've wanted there, only acceptance."i am not at all shocked or surprised. i was with jana for about a year when we (her & i and john&tammy) ran into kristin at Barnes & Noble. i had an intense reaction. It offended jana. It took quite some time for her to be "okay" with and "understand" the situation.
Labels: autism, behaviors, choices, fear, humans, lost, love, psychiatry, truth
Labels: anti-social, arrogance, behaviors, desires of suicide, exposure, love, shame, silence, sociopathy, truth, women, you have no rights

Labels: art, beauty, flickr, love, photography, respect, women
Labels: arrogance, autism, behaviors, choices, desires of suicide, fear, humans, lost, love, truth, women
Labels: autism, beauty, behaviors, BPD, choices, creative writing, desires of suicide, fear, humans, love, respect, shame, truth, women
three years ago (as of September 2007) elise crushed my heart and soul. i did this to my fist after losing yet another round of trying to reason with her in chat. i beat my fist into the keyboard until blood sprayed around. my brain suggested that i might stop at that point so as not to break any bones (i've never broken any bones).Labels: abuse, autism, behaviors, BPD, desires of suicide, exposure, lost, love, truth, women
Labels: creative writing, lost, love, truth, women
Labels: desires of suicide, exposure, fear, kutztown university, love, psychology, the corporate states of america, truth, women, you have no rights


Labels: abuse, autism, choices, creative writing, desires of suicide, lost, love, truth, women
Labels: BPD, choices, creative writing, exposure, fear, lost, love, truth, women
Labels: abuse, anti-social, arrogance, behaviors, choices, desires of suicide, exposure, lost, love, neuroracism, psychology, shame, truth, women
Labels: abuse, autism, desires of suicide, fear, harassment, lost, love, neuroracism, truth, women, you have no rights
Labels: abuse, anti-social, arrogance, behaviors, bully, choices, desires of suicide, exposure, fear, humans, lost, love, neuroracism, psychiatry, psychology, sociopathy, truth, women
(click to enlarge)Labels: exposure, humans, kutztown university, lost, love, respect, truth
Labels: autism, behaviors, choices, exposure, fear, humans, love, psychology, shame, spoken blog, truth, women
unlike the rain,Labels: autism, beauty, choices, creative writing, exposure, humans, love, truth, women
... until she abruptly pulled the plug and deleted me from her world, citing MY judgment of her as the reason for breaking it off.Labels: abuse, autism, beauty, behaviors, choices, exposure, fear, humans, love, neuroracism, psychiatry, psychology, respect, truth, women